You can’t help where you began but you can help who you become!

My brand new doctor

Two years into this medical nightmare I finally went to a doctor. I actually never met this particular dr…I’ll call him dr. Scary, I only met his nurse practitioner. She assured me she’ll figure this thing out. First things first. Time to give blood.  I swear she took a gallon. I have never seen more…

It’s over

Well I’ve had a record 3-4 months of relative bodily peace. And just when you THINK “man, I’m feeling good” it’s fucking back. It’s back. And I’m a little depressed about it. As strong as I try to get myself in between these moments, I find myself kind of panicky. PLEASE GO AWAY AND LEAVE…

The hair grower stuff

Let’s talk about minoxidil. It has literally changed my life. The directions say don’t over do it…I over do it!  I slop the stuff on. Actually slopping the stuff on is my husbands job. It takes about 20 minutes every night.  I go to bed looking like I have glue in my hair. And it’s…

An innocent question

“How are you feeling?” is such an innocent inquiry. But, yet, to a chronic sufferer it takes on a whole new power. You see, I like the fact that my friends care. I like the fact that I’ve finally shared what I’ve been going through. And they are genuinely concerned.  They want to know.  But…

Keep Going

Just when you’re feeling good….fucking bam….it’s over.  And when you’re feeling good you forget there’s a monster waiting out there somewhere. It becomes such a head game. The entire 4 year episode has been a head game. From thinking you’re going crazy to multiple misdiagnosis and panic to feeling completely alone because no one can fix…

First episode

That very first summer where everything changed, my BFF was celebrating a milestone birthday. She invited ten or so couples to Punta Mita, Mexico.  There were no other details about the trip. Top secret. Well I let her know I wasn’t going. There was no way. I had lost more than half of my hair…

You can’t help where u began but you can help who you become

I’m finding that my story isn’t all that unique. I would have discovered that almostfive years ago if I had only talked. I’m not typically an over sharer. Actually I’m really not a casual sharer.  ESPECIALLY when it has to do with my health. So I consider this a lesson I’ve learned the hard way.…

I’m a vegan

I can’t even believe it. IM A VEGAN. Not one of THOSE people. Waify runners who lead this alternative fluffy lifestyle. Yep, that’s me now. However I’m not a waify runner leading an alternative lifestyle. I’m furthering my mission to figure out this now ubiquitous disease…auto-immune.  So from the beginning when my bloodwork revealed my…

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